Bienvenido
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Titulo Artículo : | Sickle cell trait knowledge and health literacy in caregivers who receive in-person sickle cell trait education | |||
| Titulo Revista: | Molecular Genetics & Genomic Medicine |
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ISBN | 2324-9269 | ||||
| Autores | Ismahan Adan Sarah H. O'Brien Deena J. Chisolm Tanica Jeffries Kristin Zajo Elizabeth Varga Joseph Stanek Susan Creary |
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| Año de publicacion | 2017 | ||||
Suplemento |
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| Numero | 6 | Volumen | 5 | ||
| Pagina Inicial | 692 | Pagina Final | 699 | ||
| Idioma: | Inglés | Base de datos bibliográfica: | Otra |
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| Resumen : | Background Despite universal screening that detects sickle cell trait (SCT) in infancy, only 16% of Americans with SCT know their status. To increase SCT status awareness, effective education for patients and their families is needed. The objective of this study was to assess caregivers’ SCT knowledge before and after an in-person SCT education session. Methods A trained educator provides in-person SCT education to caregivers of referred infants with SCT at Nationwide Children's Hospital. From August 2015 to July 2016, primarily English-speaking caregivers of infants with hemoglobin S-trait were recruited and completed a health literacy assessment and a SCT knowledge assessment (SCTKA) before and after receiving education. Caregivers repeated the SCTKA again after ≥6 months, if they could be contacted Results Thirty-eight (38.1%) percent of 113 caregivers had high SCTKA scores (≥75%) before education but 90.3% achieved high scores after education. Caregivers with low SCTKA scores after education had significantly lower health literacy (P = 0.029) and baseline SCTKA scores (P = 0.003) compared to those with higher scores after education. At ≥6 months, caregivers’ scores were significantly higher (P = 0.014) than baseline, but only 73.3% scored ≥75%. | ||||
| Palabras Claves : | Health Literacy and Knowledge Sickle Cell Sickle Cell Trait Education |
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Tipo de acceso: |
libre | Disponibilidad | Link Externo |  |
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| Publico Objetivo: | Docentes , Investigadores , Educadores Medicos , | ||||