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Bienvenido

Titulo Artículo : Development and evaluation of a palliative care curriculum for cystic fibrosis healthcare providers
Titulo Revista: Journal of Cystic Fibrosis

ISBN

1873-5010
Autores O'Malley, Patricia J.
Friedman, Deborah
Georgiopoulos, Anna M.
Lapey, Allen
Sawicki, Gregory S.
Moskowitz, Samuel M.
Buxton, David
Altstein, Lily L.
Sicilian, Leonard
Rachel W. Linnemann
Año de publicacion 2016

Suplemento

Numero 1 Volumen 15
Pagina Inicial 90 Pagina Final 95
Idioma: Inglés Base de datos bibliográfica: ScienceDirect
Resumen : Background Primary palliative care refers to basic skills that all healthcare providers can employ to improve quality of life for patients at any stage of disease. Training in these core skills is not commonly provided to clinicians caring for cystic fibrosis (CF) patients. The objective of this study was to assess change in comfort with core skills among care team members after participation in CF-specific palliative care training focused on management of burdensome symptoms and difficult conversations. Methods A qualitative needs assessment was performed to inform the development of an 18-hour curriculum tailored to the chronicity and complexity of CF care. A 32-question pre- and post-course survey assessed CF provider comfort with the targeted palliative care skills in 5 domains using a 5-point Likert scale (1 = very uncomfortable, 3 = neutral, 5 = very comfortable). Results Among course participants (n = 16), mean overall comfort score increased by 0.9, from 3 (neutral) to 3.9 (comfortable) (p < 0.001). Mean comfort level increased significantly (range 0.8 to 1.4) in each skill domain: use of supportive care resources, pain management, non-pain symptom management, communication, and psychosocial skills. Conclusions CF-specific palliative care training was well received by participants and significantly improved self-assessed comfort with core skills.
Palabras Claves : Education
Cystic Fibrosis
Palliative Care
End-of-life care

Tipo de acceso:

libre Disponibilidad Link Externo
Publico Objetivo: Investigadores , Clinicos , Educadores Medicos ,